If you, too, have a rare child (or two) I don’t need to tell you that your whole life changes on your diagnosis day. Something like a rare diagnosis will have a profound effect on the trajectory of your life, and every aspect of it. As you might imagine, the stress and chaos of a diagnosis and getting a handle on a care team is enough to strain even the healthiest of marriages. There are plenty of times I would remind myself that while I may have been frustrated with my husband’s actions or responses to my frustration, he surely felt the same. We are vastly different people with different…